How do all of you deal with your inevitable flair ups/crashes/crisis? I have my tricks but as we all know, nothing is foolproof and chronic disease comes with no guarantee.
My Mother has been in the hospital and nursing home since June 28 after her fall and subsequent surgery on her broken leg. My sister Karen (formerly known as Mono Girl) and I have been staying with Mom and fighting exhaustion daily. I must say that Karen spends twice as much time with our Mom, my body rebels and drags me to my bed after about 24 hours. Karen is also a Chronic Girl, plagued with autoimmune issues, so she lives with daily demons also.
My question is: How do you prepare for situations that you know will lead you to major malfunction? Does anything work for you? Do you end up in bed or on the couch anyway even after taking care to pace yourself? Then what?
My careful planning has not helped me today one bit. My pain level is about a seven, my fatigue level is a definite 10, my cognitive issues are OK, maybe a two. My tolerance for further stress…..oh well, let’s say I am not leaving the house today.
So, fellow chronics…what do you do?